There's a lot to stay on top of when you're living with LAM: medications, appointments, test results, how you're feeling, even expenses. LAM Companion keeps it all organized in one place. And everything stays on your phone.
Tell the app you're newly diagnosed and it starts small, explaining each term as it comes up. Three steps, at whatever pace works for you.
Add the medication your doctor prescribed and set a reminder. That counts as a complete first day. One logged dose grows one flower in your garden.
This one takes about ten minutes: what LAM is in plain words, your medications, your allergies, who to call. If you ever land in an ER, you can hand a doctor your phone instead of an explanation.
The other trackers, like lung function, kidney monitoring, and appointments, are there whenever you want them. Switching one on takes a moment in Settings, and nothing prompts you to do it any sooner.
Your healthcare team leads. The app keeps the details organized. It wasn't built by medical professionals and doesn't act like one: it never interprets your numbers and never gives medical advice. It holds the record, so your appointment time can go toward the conversation itself.
Living with LAM means keeping track of things most people never think about: a daily medication with blood-level checks, breathing that changes with the day, lung function results a few times a year, sometimes kidney scans. General-purpose trackers weren't built for any of it.
LAM is rare enough that nobody builds software for it. LAM Companion exists to change that. The vocabulary is already built in: sirolimus, trough levels, and PFTs are fields the app ships with, not ones you have to invent. Nobody has to bend a generic tracker around a rare disease.
The app records and organizes. What the numbers mean is a conversation for you and your care team.
Enter something once and it shows up wherever it's useful. The emergency card and the doctor report both build themselves from what you've already written down.
Log doses on whatever schedule you actually take them: daily, twice daily, every other day, weekly, or as needed. Reminders if you want them, supply tracking with a refill nudge before a prescription runs low, side-effect notes, and related labs, VEGF-D included. Trough levels are charted against the reference range your care team uses.
A half-minute note on how you're doing, covering the symptoms you choose to track. Pneumothorax and chylous effusion events get their own dedicated logs, with room for the date, the treatment, and the recovery. Days off are fine. The app never nags.
PFT results for FEV₁, FVC, and DLCO, kept as both % predicted and absolute values. Oxygen readings note their context (rest, activity, sleep), and six-minute walk tests have a home here too. The charts stay neutral, with plain-language explanations beside the clinical terms.
Scan results in one place: each AML's measurements over time, along with any interventions and notes. If kidneys aren't part of your LAM, you can hide the whole section.
Your care team's contacts, appointment reminders, a prep checklist for each visit, and a place for what the doctor said afterward. Before a visit, the app builds a shareable PDF report of your recent history, so fifteen minutes with a specialist goes further. Insurance details and care expenses have a tidy home here too.
An "I have LAM" card for ER staff: what LAM is, current medications, allergies, key history, and who to call. It opens in two taps, works with no internet at all, and can be shared to a partner's phone.
Log a dose, finish a check-in, or record a result, and a small flower appears: a cherry blossom for medication, a lotus for an oxygen reading, a sunflower for a walk test.
There's no score attached and nothing to break. On hard weeks the garden waits for you, exactly as you left it.
The app asks one question at setup and meets you there.
The first weeks are a lot. The app starts with the basics (a medication, a check-in, the emergency card) and explains each term as it comes up. Everything else stays out of the way until you want it.
You're the expert on your own condition, and the app treats you like one. Quick entry, room for the history you already have, and reports built for short appointments. No tutorials in the way.
Partners, family, close friends. She can share the emergency card and the PDF report to your phone, so the medications, the history, and the right numbers to call are with you when it counts.
Health information this personal shouldn't sit on someone else's server. So it doesn't.
The app collects nothing and sends nothing. No analytics, no tracking, no telemetry. That's the App Store privacy label, and it's accurate.
No sign-up, no login, no email address. Open the app and it's yours.
No internet connection is ever required. Everything works in a clinic basement or on a plane.
Export everything as a CSV file whenever you like, share only what you choose, and erase it all with one setting.
Every feature, free, for every woman with LAM. No subscriptions, no ads, nothing locked away.
A rare-disease community shouldn't be a market. There's a small tip jar in Settings for anyone who wants to support development. Tips never unlock anything, because nothing is locked.
LAM Companion is on its way to the App Store. Questions in the meantime? We'd love to hear from you.