One private place for everything LAM asks you to keep track of.
There's a lot to stay on top of when you're living with LAM: medications, appointments, test results, how you're feeling, even expenses. LAM Companion keeps it all organized in one place. And everything stays on your phone.
A new diagnosis comes with a long list. It's okay to start small.
Tell the app you're newly diagnosed and it starts small, explaining each term as it comes up. Three steps, at whatever pace works for you.
1
Start with your medication
Add the medication your doctor prescribed and set a reminder. That counts as a complete first day. One logged dose grows one flower in your garden.
2
Set up your emergency card
This one takes about ten minutes: what LAM is in plain words, your medications, your allergies, who to call. If you ever land in an ER, you can hand a doctor your phone instead of an explanation.
3
Choose what you need
The other trackers, like lung function, kidney monitoring, and appointments, are there whenever you want them. Switching one on takes a moment in Settings, and nothing prompts you to do it any sooner.
Your healthcare team leads. The app keeps the details organized. It wasn't built by medical professionals and doesn't act like one: it never interprets your numbers and never gives medical advice. It holds the record, so your appointment time can go toward the conversation itself.
Why it exists
Generic health apps have never heard of a trough level.
Living with LAM means keeping track of things most people never think about: a daily medication with blood-level checks, breathing that changes with the day, lung function results a few times a year, sometimes kidney scans. General-purpose trackers weren't built for any of it.
LAM is rare enough that nobody builds software for it. LAM Companion exists to change that. The vocabulary is already built in: sirolimus, trough levels, and PFTs are fields the app ships with, not ones you have to invent. Nobody has to bend a generic tracker around a rare disease.
The app records and organizes. What the numbers mean is a conversation for you and your care team.
The calendar
A lung specialist, a kidney specialist, a primary care doctor. Three offices, three patient portals, none of them talking to each other.
The paperwork
Results arrive as PDFs, printouts, and voicemails. The page you need is always in the other folder.
The pharmacy
A refill to request before the bottle runs out, and a note about what insurance covered this month.
The visit
Fifteen minutes with a specialist, and the four questions you meant to ask.
What it does
Six features that cover the whole list.
Enter something once and it shows up wherever it's useful. The emergency card and the doctor report both build themselves from what you've already written down.
Medication & trough tracking
Log doses on whatever schedule you actually take them: daily, twice daily (with a different morning and evening amount if that's your prescription), every other day, weekly, or as needed. Logged a dose late? Tap the time and set it to when you really took it. Reminders if you want them, supply tracking with a refill nudge before a prescription runs low, side-effect notes, and related labs, VEGF-D included. Trough levels are charted against a commonly used reference range, though your doctor may work from a different one.
Daily check-in & symptom journal
A half-minute note on how you're doing, covering the symptoms you choose to track. Pneumothorax and chylous effusion events get their own dedicated logs, with room for the date, the treatment, and the recovery. Days off are fine. The app never nags.
Lung function & O₂
PFT results for FEV₁, FVC, and DLCO, kept as both % predicted and absolute values. Oxygen readings note their context (rest, activity, sleep), and six-minute walk tests have a home here too. The charts stay neutral, with plain-language explanations beside the clinical terms.
Kidney (AML) monitoring
Scan results in one place: each AML's measurements over time, along with any interventions and notes. If kidneys aren't part of your LAM, you can hide the whole section.
Appointments & doctor-ready report
Your care team's contacts, appointment reminders, a prep checklist for each visit, and a place for what the doctor said afterward. Before a visit, the app builds a shareable PDF report of your recent history, so fifteen minutes with a specialist goes further. Insurance details and care expenses have a tidy home here too.
Emergency card
An "I have LAM" card for ER staff: what LAM is, current medications, allergies, key history, and who to call. It opens in two taps, works with no internet at all, and can be shared to a partner's phone.
…and the small things, cared for too
Reminders you choose. Medication, check-ins, appointments. Each kind has its own switch, and the daily check-in reminder stays off until you choose it.
Streaks without judgment. Your streak and adherence numbers are there when you're curious, and they never scold.
Weight tracking. An optional log of your numbers over time, shown without comment.
Your data is yours. Export the whole record as a CSV file whenever you like, and take it anywhere.
Plain words everywhere. Little "what is this?" explainers sit beside the clinical terms.
A garden that grows. Logging plants flowers, one bloom per act of care. More on that below.
Light and dark. The same calm design at noon in a waiting room or at 2 a.m. when you can't sleep.
A look inside
See it for yourself.
Nine screens in the order you'd meet them, from the first welcome to the card you hope you'll never need.
A welcome, not a form.
The whole day on one screen.
Checked in, in half a minute.
A month of doses, no judgment.
Trough levels, charted with context.
Years of trends, shown gently.
Patterns worth bringing to your doctor.
Fifteen minutes, made to count.
Your phone does the explaining.
A little joy
A garden that grows as you care for yourself.
Log a dose, finish a check-in, or record a result, and a small flower appears: a cherry blossom for medication, a lotus for an oxygen reading, a sunflower for a walk test.
There's no score attached and nothing to break. On hard weeks the garden waits for you, exactly as you left it.
🌸 Medication
💜 Check-in
🌷 Lung function
🌻 Walk test
🪷 Oxygen
August, one bloom at a time.
Who it's for
Wherever you are with LAM.
The app asks one question at setup and meets you there.
Newly diagnosed
When everything is new
The first weeks are a lot. The app starts with the basics (a medication, a check-in, the emergency card) and explains each term as it comes up. Everything else stays out of the way until you want it.
Managing for years
When you know your routine
You're the expert on your own condition, and the app treats you like one. Quick entry, room for the history you already have, and reports built for short appointments. No tutorials in the way.
The person beside her
When you're helping keep track
Partners, family, close friends. She can share the emergency card and the PDF report to your phone, so the medications, the history, and the right numbers to call are with you when it counts.
The privacy promise
Your phone is the only place your data lives.
Health information this personal shouldn't sit on someone else's server. So it doesn't.
Data Not Collected
The app collects nothing and sends nothing. No analytics, no tracking, no telemetry. That's the App Store privacy label, and it's accurate.
No accounts
No sign-up, no login, no email address. Open the app and it's yours.
Works offline
No internet connection is ever required. Everything works in a clinic basement or on a plane.
Yours to keep, or to erase
Export everything as a CSV file whenever you like, share only what you choose, and erase it all with one setting.
Every feature, free, for every woman with LAM. No subscriptions, no ads, nothing locked away.
A rare-disease community shouldn't be a market. There's a small tip jar in Settings for anyone who wants to support development. Tips never unlock anything, because nothing is locked.
All six features included
No subscriptions
No ads
Made with care for the LAM community.
LAM Companion is on the App Store. Questions? We'd love to hear from you.
